Disability in the Laboratory

I’m working on writing a paper on accessibility in Chemistry labs. It was a broader topic, but I decided to narrow it down to my discipline because a general overview of disability and science is too broad, but hopefully a look into the specific branch of chemistry, and more specifically on Chemistry labs, that I might be able to learn something interesting. Here’s what I’ve got so far, which isn’t very much and definitely not complete, but it’s something.

Introduction

People with disabilities have been a long part of the scientific discourse and discovery for centuries. John Dalton (1766-1844), who was colorblind, was one of the first people to scientifically study colorblindness and it’s causes, as well as being an influential chemist, physicist, and geologist. Charles Steinmetz, a mathematician, and physicist, had Kyphosis, a condition that made him look according to the Smithsonian, “four feet tall, his body contorted by a hump in his back and a crooked gait, and his stunted torso gave the illusion that his head, hands and feet were too big.” He was the first to describe the law of hysteresis, which was influential in the development of alternating- and direct-electrical current technology (AC and DC). And yet, perhaps the only disabled scientist you probably know is Stephen Hawking.

I was brought into this discussion with an essay presented in the book “Disability Visibility” written by Wanda Diaz-Merced titled “How a Blind Astronomer Found a Way to Hear the Stars” (the essay was originally presented as a Ted talk, an astronomer who developed blindness during her college studies, and found a way to translate graphical data to sound, a process called sonification.  

  1. A look around the narratives presented by American Chemical Society
    1. Krystal Vasquez, “Excluded from the Lab”
      1. https://www.npr.org/2021/05/27/1000869161/disabled-scientists-are-often-excluded-from-the-lab
      1. Krystal Vasquez does talk about access in conferences, which is a good tie in with Margaret Price’s “The Construction of Disability in Conference Policy
    1. Annemarie Ross
      1. https://www.youtube.com/watch?v=MvpLzkDdulw
      1. https://www.youtube.com/watch?v=Hni7BxQM7c8
  2. A look at the guidelines presented by the ACS
  3. Perhaps a look into the chemistry labs and how they make their labs accessible. (Field Trip! This could fun!) See how Western complies with these guidelines.
    • Here’s some picks of the disability amenities presented in the lab that I work in:

A Major Proposal Monster

  1. Title: The “Monster” Within: An Analysis of Disability as “Monstrous” in Literature
  2. Central Question: In early literature, monsters or monstrous figures were often caricatures of disability. These caricatures led to generalizations of disability that when replicated led to widespread misunderstandings of how disability is experienced and perceived. How did early literature characterize disability and what are the modern repercussions?
  3. Product Design: I will be creating the beginnings of a thesis essay, estimating 15-20 pages of research and analysis of literary works and modern interpretations. Many of the literary works will come as a result of the analysis portions, provided by the Disability Studies Quarterly journal and academic essays published by universities.
  4. Production Plan: This product will be a result of hours of research and culminating analysis which will have to be done over a long stretch of time. I plan to meet with the professor on either the 10th or the 17th to present initial findings and the general structure of the essay. The work-in-progress will hopefully be the second or third draft of the thesis, with only minor adjustments and citations to be added.

Proposed Schedule:

November Week 1: Outline and First Draft of Sources

November Week 2: First Draft of Content -perfect citations

November Week 3: Second Draft of Content: After meeting with professor and finalizing Chicago Style sources at the RWS

November Week 4: Third Draft and Final Edits

  1. Consultation: I will hopefully be in contact during several points of the essay, but mostly using the professor as a touchstone of major ideas. I tend to get carried away with either too much research or too much analysis, so getting feedback on whether I am finding a good balance will be helpful. This will likely come after the first draft of the essay.

Special Questions: Thinking of formatting of research and analysis, I think that it is best to go via topic vs. via source (ie: multiple sources on the topic of mobile disability vs. analyzing Shakespeare, then Hugo, then Wordsworth, etc.) Would this be preferable for an academic paper? Is it considered too “passe” if my “modern perceptions of disability” look at how Disney has taken literary stereotypes and morphed them further? Or should I just be looking at how the stereotypes are repeated in modern literature?

  1. Citations: I have about 20 gathered right now, not that I will use all of them. But these are some I have come across.

Mary Shelley’s Frankenstein, Disability, and the Injustice of Misrecognition https://dsq-sds.org/article/view/7109

Aesthetic Traces in Unlikely Places: Re-visioning the Freak in 19th-Century American Photography https://dsq-sds.org/article/view/613 

Disabling Imagery and the Media: An Exploration of the Principles for Media Representations of Disabled People https://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Barnes-disabling-imagery.pdf 

Disabled Literature—Disabled Individuals in American Literature: Reflecting Culture(s) https://scholarspace.manoa.hawaii.edu/bitstream/10125/58432/1/574.pdf 

Project Proposal

  1. Title
    1. My central question Is what is the effect of becoming disabled as a child as a result of war and what that does to their mental state. The proposed product is a creative piece about these children’s lives and experiences.
  2. Central Question
    1. I’m trying to understand and put my feet into the shoes of the people my age in my country that have become disabled due to standing up for their rights and independence. I want to understand what this does to their mentality.
  3. Product Design
    1. This project is going to look like a creative non-fiction piece that forces readers to connect and learn about what it is like to be a child with a disability due to war. It will be influenced by my experience as a Palestinian woman and the research I have done for this project.
    2. I think the structure will come to me as I research, it is going to have a lot of my personal thoughts and feelings influencing the piece and so I think I’m just going to write and see what comes out and go from there.
    3. I really want to explore the mentality here. I want to know how exactly it feels to be a disabled child as a victim of war, and then to be targeted because of that disability. I want to know what it does to know the medical attention that you need, you’ll never get. I want to see what it does to know you can be permanently scarred for standing up for your right to survive.
  4. Production Plan
    1. I’m going to start by researching, then write everything I feel and want to say out before editing and organizing it into a coherent creative piece. (I know this isn’t super planned out but my creative pieces work best when they aren’t.
  5. Consultation
    1. I think it would be the most helpful to meet with Andrew towards the end of my project when I have the working pieces and I am trying to sort my thoughts out. I want input and perspective on my writing and its effectiveness for the reader.
  6. Citations
    1. http://humanityjournal.org/issue11-3/a-deep-and-ongoing-dive-into-the-brutal-humanism-that-undergirds-liberalism-an-interview-with-jasbir-k-puar/
    2. https://www.unicef.org/mena/press-releases/no-end-sight-seven-years-war-syria-children-disabilities-risk-exclusion
    3. https://www.middleeasteye.net/news/gaza-palestine-israel-war-disability-children-school

Major Project Proposal

Tentative title:

“Wardrobe of Masks”– a visual for the interaction of passing and masquerading in relation to identity and society

Central Issue:

How do different societal interactions affect one’s expression of identity? My Exploration will mainly focus on the impact outside perspectives have on personal expression when it comes to disability intersecting another minority status. In particular, I plan to investigate potential reasons for changes and hierarchy in performances.

Product Design:

Drawing inspiration from Tobin Seibers’ “Disability as Masquerade”, the product will be a literal mask. This is partially to evoke the idea of masking, a term referring to passing in the Nuerodivergent spheres, and to directly reference what Seibers refers to as ‘Masquerade’. The mask will have three to four layers, each layer representing a different community and the fictional mask wearer’s performance of identity in that community. Underneath all the masks, though still in the works, the mask wearer’s actual face will be represented by sculpted creature. I am reserving the right to change how the core person is represented. To help enrich the different masks, I plan to reference quite a few chapters from Visibility Disability in each layer. At the moment, I am still deciding on my other major sources for the overall final product. These sources will probably impact how I display the masks. They also might impact the dialog which I plan to write to represent interactions between the masks.

I also think it will be fun to play with an idea that people change up their performance like clothes depending on the situation. This may result in the masks being stored in a box made to look like a wardrobe or closet. This will probably be where the dialogs will be displayed.

Production Plan:

Week 1(11/1-11/7): Gather materials, finalize main sources.

Week 2(11/8-11/14): Start constructing the masks, and draft the thematic dialog, meet with Andrew to review project so far.

Week 3(11/15-11/21): Finish constructing the bases of the masks, have completed drafts of all dialog.

Week 4(11/22-11/28): review dialog drafts (other people besides myself), start adding the finishing touches to each mask.

Week 5(11/29-12/5): add final details, complete any last minute changes.

Consultation:

Ideally, the meeting would be in the earlier stages of the project, before a structure has been fully committed to. The Masks will take some effort to make and there will point where I cannot make any changes to a layer without remaking the whole layer. Ideally I would like to meet on November 10th as I will probably have not started making the masks, but will have completed the bulk of my research. I would like to know if there are any other sources on passing or similar to the readings we have done by Dolmage. I think readings more focused on general themes rhetoric surrounding disability would work well in informing the dialogs’ structure and content.

Citations:

Kuppers, Petra. “performance”, Keywords for Disability Studies.  Edited by Adams, R., Serlin, D., & Serlin, D. H. (2015). NYU Press.

O’Toole, Corbett Joan. “Celebrating Crip Bodyminds” Fading Scars: My Queer Disability History, 1st ed., Autonomous Press, June 9th, 2015, pp.13-53

Dolmage, Jay. Disability Rhetoric. First edition., Syracuse University Press, 2014(. Pp.93-125)

Disability Visibility: First-Person Stories From The Twenty-First Century, edited by Alice Wong, Vintage, June30th, 2020.