The Eyes of the Monster

My final project is an academic analysis of monstrosity and disability. Initially I was planning on looking at the history of the monster through a disability lens, but instead I have decided to take 3 forms of media and analyze how they use disability to portray monstrosity. Specifically, I am looking at Frankenstein, The Phantom of the Opera musical and the children’s book, Wonder.

As of today, I am a little less than 3000 words into this essay which aims to be about 4000 words, or 15-20 pages after formatting and citations. My goal is to get the final 1000 words before this coming Monday, and then work on reformatting and adding additional citations as needed. I am using the theoretical framework of the “recognition” (and by proxy, misrecognition) theory in politics and using it under a disability framework as well as work from Rosemarie Garland-Thomson and her work with freaks, staring, and disability. I really like the theory of misrecognition, as it gives power to the viewed and talks about the nature of bias and power dynamics in literature and media.

Right now my biggest challenge is getting everything to sound academic. My ultimate goal is to get this completed to submit for graduate application. I am struggling to get all of my analysis to sound coherent, but I do have quite a bit of analysis complete, especially for The Phantom of the Opera.

This project is showing me that there are a lot more cases of monsters as othering for literature and beyond. I really struggled narrowing down my sources and what works I wanted to focus on. It gives me hope if I end up pursuing this as a doctorate thesis, I have a lot of works to choose from and even more frameworks to view them through.

My questions would be:

How do you view facial deformity? Do you have any references of monsters in literature that act as characters of disability?

Some work that I have already completed, I will spare you 3000 words worth of work. So here is a bulleted example of some analysis that I am looking at for my work.

This is from my introduction:

When one thinks of the monster as a deformed body or a portent of misfortune, it draws connections to the Victorian entertainment of the Freak Show. The Freak Show was often put on as a traveling expedition featuring monsters and freaks of nature, creatures who were not meant to exist but walk among the populace. The “beings” featured in these Freak Shows were often people with visible, physical disabilities. Ranging from dwarfism, to limb difference, to the “stretchy skin” side effects of Ehlers Danlos Syndrome, the majority of the attractions of the freak show were not monsters or freaks, but in fact people with disabilities. These shows were invitations to stare at the other, creating a barrier between the “normal” audience and the abnormal, “monstrous” freaks that lay spectacle. 

This is from the analysis of the Phantom of the Opera:

  1. The Phantom is accustomed to such reactions, later even mentioning that his own mother reacted in a similar fashion. From birth the Phantom is misrecognized as a monster, a creature, a phantom. Phantom is defined as a ghost or a figment of the imagination, simulating that because of Erik’s disability, he isn’t even granted the semblance of humanity’s existence and is instead immediately recognized as a monster. 
  2. Throughout the opera, the phantom is given metaphors of being “of the night” which can be understood as both being hidden, away from the light, and the only things that happen in such dark places are acts of evil. So by proxy, the phantom is evil through his existence and his disability.

If you want to see more, I have tons. Let me know!

Unintended Orphans

The film The Kids Aren’t Alright gives us an inside look at what it is like to suffer from a disability and get unwanted and unhelpful assistance. The film centers the story of a telethon created by Jerry Lewis and the Muscular Dystrophy Association (MDA) that is meant to raise money and donations to help look for a cure to this condition. The film highlights that this telethon is counterproductive. The telethon is created to get people to pity and feel bad for people with Muscular Dystrophy, to guilt them into donating. Jerry Lewis and the MDA paint this unrealistic picture that people with this condition are suffering, that they are not able to live life to the fullest. That these people desire a cure for their condition, as if it is a requirement to live a full life. Jerry’s Orphans challenge this perception that Jerry Lewis and the MDA has created. They bring to light the fact that they can live happy lives full of love, happiness, and fulfillment and they are not looking for anyone’s pity.

The rhetor in this documentary is the creator, Mike Ervin, and his goal with this film is to bring to light the misconceptions and truths of living with Muscular Dystrophy. Ervin establishes his personal authority by speaking about his personal experience as someone with Muscular Dystrophy, he gets people to empathize with him by sharing personal stories of discrimination and hardships he has faced while bringing to light a corrupt system and organization. Him, and the rest of Jerry’s Orphans, go about trying to accomplish this by leading non violent protests during these telethons, handing out pamphlets, making phone calls to people in power, and simply educating people on what it is to be a person with this disability and what we can do to actually help them.

I give this film a four out of five stars. I think the film did a great job highlighting the voices of those with Muscle Dystrophy and explaining what is offensive, disrespectful, and ignorant about Jerry Lewis’s yearly telethon. It did a wonderful job depicting the actions and success but also the obstacles that Jerry’s Orphans have experienced and taken. The one thing I wish the film did was tell the viewer how to be of assistance. By watching the film I am know educated and enlightened on these people’s struggle and experience but the film does not tell me how to take action or in what way they would like us to help them with their cause.